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2017 01 20 13 19 Genetic Rare Diseases GARD Information Center Webinar

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Review the NORD Website

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MPG Primer: Genetics in Mendelian Human Disease (2016)

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Heartland States_ CCHD Update Webinar March 2013

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Identifying genetic variants associated with rare Mendelian Diseases

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2017 05 25 12 01 Hispanic Access Project Communicating with the Hispanic Family in the Genetics Cli

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Heartland’s Healthcare Transition Project Updates by Wendy and Richard Parent
Johnson

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Heartland COIIN for Timeliness in NBS 2/24/16

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CCHD Screening
An Overview for Moving Forward

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Individualized Healthcare Plans: What is YOUR State Doing

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Weighing the Evidence for Newborn Screening

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Arkansas Newborn Screening Long term Follow up Database

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HIPAA and FERPA Working Together While Keeping the Privacy of the Student in Mind

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Comparing School
Based Plans for CYSHCN and/or Genetic Conditions

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Disability Disclosure

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Self
Advocacy